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The A-T Society helps and support families living with Ataxia-Telangiectasia a rare and complex genetic disorder.
It provides support, advice and advocacy for people with A-T and their families. Financial assistance is given through its Support Grants System.
The grants can be used for a variety of options including a wheelchair, specialist equipment and a holiday provided it benefits the person with has A-T.
All applications must be accompanied by written assessment of need and the suitability of the item. Individuals and families are asked to contribute 20% of the cost.
To apply: download an application form from the website.
Aspire supports individuals who have been paralysed by spinal cord injury.
At present they only offer grants for everyday wheelchairs and associated mobility equipment such as power add-ons.
Aspire also helps with crowdfunding for yourself or someone you know with a spinal cord injury. "Your Fund" enables your friends and family to help pay for the costs of essential equipment and services.
A member of staff will help you set up a fund, set up a Just Giving page and give fundraising advice.
Aspire also offers welfare benefit and housing advice.
The Back Up Trust inspires people of all ages affected by spinal cord injury to get the most out of life. It is the only charity in the UK with dedicated services for children and young people.
It provides many free support services including wheelchair skills training, mentoring and online Lounge and a variety of courses.
The courses aim to increase confidence and independence in a supportive environment. They’re also led by people who have a spinal cord injury themselves – allowing participants to learn from others who have who have been there and can understand the issues and challenges.
Back Up relies on the generosity of individuals and companies to fund our programme. The Trust asks all participants to make a suggested donation towards their course place. Though it does understand that everyone’s circumstances are different so making a full donation isn’t always possible.
Don’t ever let money concerns stop you from applying for one of their courses. It will never allocate or refuse a course space based on your ability to make a donation.
Check the website for the Back Up Trust's Course Calendar, and phone or email the team for more details.
To apply: complete the online application form.
The Ben Hardwick Fund
The Ben Hardwick Fund supports children with primary liver disease.
It is able to help with small grant towards the costs associated with the illness such as travel to hospital.
To apply: by letter to Mrs Anne Auber, 12 Nassau Road, London SW13 9QE
Applications are to be made by an appropriate professional.
The Brittle Bone society supports individuals and their families affected by Osteogenesis Imperfecta throughout the UK and Ireland.
It offers advice, information and resources as well as support grants.
The charity is able to part fund manual and powered wheelchairs, trikes, buggies and other types of equipment. It occasionally helps fund holidays and respite care.
To apply: download an application form.
Kidney Care UK is the UK'[s leading kidney patient support charity.
It provides individual and hardship grants to pay for domestic bills, household items, travel expenses and higher education and training.
It's personal grants are available to:
The charity is able to fund outstanding domestic bills, car insurance or heating costs. It is also able to help towards the purchase of items such as washing machines, cookers, beds and carpets.
It may also be able to with travel costs to hospital and a contribution towards the cost of training.
Individuals and families may also receive funding towards a holiday or respite break.
To apply: Contact your kidney unit social worker or a member of your kidney carer team. Alternatively contact a Patient Support and Advocacy Officer at Kidney Care UK telephone number: 01420 541 424
or email: info@kidneycareuk.org.
Kids with Arthritis is the leading support charity in England and Wales for families and children suffering from Juvenile Idiopathic Arthritis (JIA).
It provides emotional and practical support through educational and recreational opportunities.
The CCAA organises family support weekends with fun activities for the kids and information sessions. Applications are now being taken for its 2019 weekends.
These weekends offer free accommodation and meals. A small £30 donation to the charity is requested.
The charity is planning to run a days for educational, recreational support, further education and independent living.
The Cystic Fibrosis Trust provides financial support to children and adults with Cystic Fibrosis.
Edward W Joseph Cystic Fibrosis Home Care Programme - to allow people with Cystic Fibrosis to be at home safely with appropriate care through one off grants of £500.
Emergency Grants - £150 grants to help people of any age with Cystic Fibrosis with an immediate need. This includes the replacement of white goods and emergency household repairs.
Transplant Grants - of £250 to help with the costs associated with attending a transplant assessment and having a transplant.
Health and Wellbeing Grants- of up to £350 to fund goods and services to improve health and wellbeing of someone with Cystic Fibrosis.
Holiday and Break Grants - of up to £300 to fund holidays, breaks, rips of days out for those who are unable to afford a break.
Home Care Grants - up to £500 for times of acute illness or personal crisis.
Prescription Pre-Payment Certificate Grants - one off grants to fund the cost of a pre-payment certificate of prescriptions.
Funeral Grants - of £750 to help towards funeral costs.
Applications for these grants can be downloaded from the website. Support will be required from a suitable professional.
The Trust also administers The Joseph Levy Education Fund - to help young adults over 18 years develop their careers in further and higher education. It may help towards tuition fees, living expenses, examination fees or other costs that help the young person with their career.
Applications are assessed twice a year.
The Cystic Fibrosis Holiday Fund (CFHF)
The CFHF provides financial assistance for children under 18 years with Cystic Fibrosis and their families.
It has two grant programmes:
Respite Break Grants - a grant of £350 towards a day trip, excursion, holiday of break. Applications are considered 4 times a year.
Family Revitalise - provides funded holidays to families in exceptional circumstances.
The Douglas Bader Foundation exists to support individuals who are without one or more limbs.
The grant scheme provides practical support for individuals to reach their goals - these may be varied - from education, sport, art to a small business.
Applications can be made using the on line form or by contacting the Foundation at douglasbaderfdn@btinternet.com
The Foundation also run a new venture called Bader Braves to help children who have lost limbs or have a physical disability.
It offers experiences to help them increase their confidence through Aviation Days and Adventure weekends. (Look under Events).
www.douglasbaderfoundation.com
The George House Trust provides services to people living with and affected by HIV.
It is able to offer one to one advice, group services and support in coming to terms with a diagnosis.
It operates its own Welfare Fund to fund essential household items, white goods, clothing and help with utility bills.
To apply: complete the online application form.
In addition, it will help with applications to other charities and organisations.
The Haemophilia Society run a range of children's activity weekends for affected children and their siblings.
It has also secured use of a caravan owned by the North Norfolk Caravan Trust for individuals with bleeding disorders.
The caravan is offered for use at a discount - £80 a week and £10 for Linen.
To book contact Daphne on 01328 711122 or Mary on 01328 710901.
A local group in Northern Ireland also have a caravan on the Antrim coast for use by anyone in the UK affected by a bleeding disorder.
The Jewish Association for the Physically Handicapped (JAPH)
They provide grants for disability equipment and other essential items for Jewish individuals, living in England with physical disabilities or sensory impairments.
Further information: Howard Kennedy Llp, No 1 London Bridge, London, SE1 9BG
Telephone: 0203 755 5421
Email: robert.craig@howardkennedy.com
The Jewish AIDS Trust (JAT) works with the Jewish community supporting and advising those with HIV and AIDS.
It also offers a non judgemental counselling service and financial support for people living with HIV/AIDS.
To find out more telephone: 07546 42985
Meningitis Now provides support to individuals who have had meningitis and their families.
It is able to offer financial support through its new Rebuilding Futures Fund.
The fund provides support for people of all ages affected by meningitis and focuses on four areas:
Health and Wellbeing - includes counselling, creative therapies, complementary therapies, exercise, short breaks and days out.
Opportunities - includes education support, book or equipment for a training course, technology to support learning eg: laptops, iPads and tuition and retraining costs.
Bereavement - includes funding towards funeral costs, headstones and bereavement counselling.
Specialist Equipment - includes mobility aids, specialist trikes and bikes, specialist beds, sensory toys, home adaptations and prosthetics.
To apply: telephone 0808 80 10 388 for an informal chat and to request an application form.
A supporting statement provided by a relevant third-party professional may be required at the time of application
The Muscular Dystrophy UK provides grants for both children and adults with muscle disease through the Joseph Patrick Trust (JPT).
It is able to part fund equipment such as manual and electric wheelchairs, trikes, assistive technology, therapy equipment and electric beds.
To apply use the online form.
REACH, the charity for children with upper limb deficiency provide bursaries for their members who are under 25 years at the time of application.
Previous awards have been given for driving and home adaptations, computer access equipment, musical instruments and equipment to help with sports, education and training.
To apply: download the short application form. Professional endorsement required.
The Terrace Higgins Trust offers hardship funds to people with HIV on low income.
The funding is available for short term financial need or in a crisis.
Further details can be obtained from the Terrace Higgins Trust. Either use the online contact form or:
Telephone:
0808 802 1221 for an adviser
020 7812 1600 for switchboard
Address:
314-320 Gray's Inn Rd, London WC1X 8DP
Jimmy's Association for Kidney Children (West Yorkshire, Derbyshire and Lincolnshire)
Life After Stroke Grants (Scotland only)
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